Monday, January 30, 2012

playing outside in january equals sickness:(

The title explains it all:( Saturday lou and sam wanted to play outside since it was nearly 65 degrees. We really didnt want them to but it was just a pretty day outside. Rarely ever does SC get a beautiful day in the winter so we gave in. Sunday morning you could tell he was starting to get sick but no symptoms just the "look" in his eyes.
This morning (Monday 1-30-2012) He woke up at 5:30 but fell back to sleep watching Barney. And then woke again at 6:15 when my alarm clock went off he didnt want to get up at all. We layed down til 6:35 and then i finally got up and got his clothes up and shoes and brace together. While i was putting on his shoes he did NOT want to partisipate at all he just wanted to lay there which is NOT like Lou at all. After i fixed his breakfast he told me "Sissy im sick i dont want to go to school" so i told him " Well we're going to take you but if your teacher feels like we have to come get you then we will ok" and with a sad little face he said "ok"
On the way to school he ate his breakfast like normally and then after he put his head on my shoulder which is DEFFNIATELY NOT LIKE LOU. and then once we passed his old school which is like 7 mins before his school he tells me again "i dont wanna go to school" It was sad :/ But as soon as we got to school the bell rung and he spurted on up:) So hopefully he'll be a brand new feelin good Lou:)

Sunday, January 29, 2012

Sunday 1-29-2012

Today was truly awesome for Lou:) Uncle Gary and Aunt Samantha and Cousin Cody James came over today for a little while and believe it or not he did really good. He pinced twice (alot better then normal) and pitched a fit once. Toward the end of the day when Uncle Gary and them were leaving. Lou Sam and Cody was playing with each other and omgosh it was so cute:) then They left and Lou was still doing good he was watching Godzillia with Sam on the xbox while momma was resting. After momma left to go to work Lou got on the computer for me to wash Dishes and Sam was on the xbox. And then after i was done washing the dishes, i told Lou come on time for yal to switch and by 8:30 he was out like a bulb:) Came in here and Sam was out to. Lou is still sleepin and havent woken up once yet and it is 11 34 pm. So today was a LOT better then last 2 weeks. Lets hope tomorrow is just as good:)

Saturday, January 28, 2012

week of 1-22/1-28-2012

This week Lou has had a hard time of listening. He has had mulitiple outbreaks of wanting to hit,pinch, and bite. Lou has played alot more then usual thou. He still loves his music and he has not fell down as much.
Monday the 23rd he bumped his head while in Physical Therapy. We were really worried about him because the first time his shunt went out is because he bumped his head. The following day Tuesday he was real tired and very irritable but later on that day he perked on up:)So that was a real good sign. The rest of the week he was his regular ol self Lou.
On Friday Amber and CLint came over with Gabby and Alex and he had a ball playing with other kids other then his little brother Sam. Lou and Alex listened to his DVD player and watched Rugrats goes Wild on Netflix.

The story of Lou

Lou was born on Jan 10, 2006. He gave momma the worst labor that she went thru. He was delivered twice. And the cord was wrapped around his neck. so not only did he have fluid on his brain but he was blue, daddy said he looked like a blue berry and his head felt like a water balloon. 3 days later he went under surgery for his 1st shunt Mclanahan didnt know what to think about him. He said we need to watch him carefully bc he honestly didnt know if my little brother was gonna make it or not. at 2 months he started goin to his eye doctor. said he had a little stignatism and he wanted to put glasses on him but since he was little he said it was to early. months he started seein his EIP : Stacy . She helped him get up to some potencial but he still wasnt rolling over. he scooted with ONE arm, he doesnt use his right arm. at 13 months he started goin to therapy over at touch stone therapy for PT. Then a few months later when a spot for OT came in he started it then. And then later on Speech. when Lou was 17 months old Sam was born we still wasnt gettin no where He had to be carried everywhere. His terriable 2s started coming in and lets not forget about his 15 month molars. He was wanting to start potty training then to. but he couldnt walk. so at 22 months His PT said lets put him in a leg brace to strengthen up his right leg and with in a week he started pulling up. with in 2 weeks he started takin baby steps in another 2 weeks he was walkin full speed, falling but he was walking. His therapist was proud and me and momma was proud. at age 3 he started school with Mrs. Charity and Miss. Mona at Child Development center. they wanted to put him in another brace so we got his pediatrictian to write a prescription for it. It said Cebral Right Hempistere on it. This is when we found out he had a touch of cebral Palsy. Dont know much about it but him not liking crowds and loving water so much made some since now. But everyone at CDC feel inlove with lou. They loved him they said he brightens their day. :) then Feb in 2009 Lou expeirenced the worst headache someone could get. He screamed for 15-20 mins straight he vomited clear watery puke. Called momma took em up to CMC and found out his shunt has gone out. hour later he was in emergency surgery to get his pain and get a new shunt in him. recovery went great came back home. Then in 4 months He had another episode. momma got home rushed him back up to the er. this time it wasnt that bad bc we caught it as soon as it was goin out. so the next morning he had another surgery. Recovery went great and they also put in a shunt assistatnce in to let it pump slower and not work so hard. So ya see Lou has been thru sooo much but he doesnt let anything get him down. you have to have patience and be gentle and love him everyday all day. Hes a 6 yr old with a mind of a 3 yr old. Alot of people dont understand him and alot of people looks at him thinkin gosh he needs some discipline but what they dont know is that hes not your average 6 yr old. Hes a special needs special special yr old. If you read this it'll mean alot so maybe next time you see a child that you think needs some discipline look at them 2 before you judge them. listen to the way they scream, their body frame and even how they talk, or in lous place the way the head is shaped. Some kids cant help how they act. Lou is a 6 yr old with hydrocephalus, cebral palsy, limp in his right leg, dont use his right arm, has stigmatism and on top of all that He has ADHD. I thank God for my miraclle little brother I love you Loubird!