Sunday, April 14, 2013

Headache tantrum oh my !


Lou started having a tanturm/ headache at about 7:30 tonight. it started as a tantrum and then ended up as a headache. he is coned headed where his skull does not come together he complain about his head hurtin there. but I felt the spot and there's no buldge of fluid. so definitely going to tell mom about it and see what she has to say. it kinda freaked me out because this is the first time it has happened. but no vomit so this is not a worry attack or nothing. just one weird headache. but since it is where his skull is not coming together it kinda has me worried

Monday, March 25, 2013

march 25th, 2013


so today i would have to say was wonderful for Lou ♥ He started a new medication. Metadate CD 20 mg and it was like he was a total different child. I know this is the first day but i think we have a winner :)
They changed it from methaphenidate because it wasnt lasting long enough, he was being extremely loud, hittin walls, bitting his clothes, and really hyper. and today the therpaist and his teacher said that today was wonderful for him AND he said "I LOVE MY NEW PILL" 

but on saturday we will see how his anxiety does with it. SO THAT will be the real tester <3

Thursday, September 20, 2012

2 posts from facebook♥

September 18th, 2012
Everyone please keep Lou in your prayers♥
He complained this morning that his shunt was burning and the shunt area is very sensitive :/ ( i couldnt even wash his hair normal this morning) . Momma called the neurosurgeons nurse and she said she has not heard anyone with a shunt saying it has ever burned, And to keep an eye on him and call them back if it happens again. She said we dont want to just assume its something but to look out for other signs like fever, vomiting, and headaches. Thanks so much♥♥


September 19th 2012
just about 36 hours since momma has called Lous neurosurgeon and He hasnt had NO more burning♥ YAY :) shunt is still sensitive thou BUT i was able to wash his hair like i normally would. Maybe me and momma does have to worry about something other then a Stomach virus or a simple little cold but worrying over something that could cause him to have to have immediately surgery 36 hours prior to Not have a worry in the world is simply AMAZING♥ And Sam had a WONDERFUL day today knowing that His big brother is ok :)

Monday, September 3, 2012

one weird Bad Headache.

Well Lou had a bad headache today but it was weird how it happened.
We went to the store momma got out of the store *it was raining and with mine and lous bad balance didnt wont to risk it* And about 2 mins after momma went into the store Lou starts screaming and it gently went down to a little whining. We live about 9 and a half minutes away from the store and he whined about his head hurting the whole 15 minutes. The weird part is that he was fine and dandy when he got out of the car. It was strange to me. He has NEVER done that before. He was acting like he does when his shunt malfunctions but he never once got sick.
But right now he is asleep, and comfortable as can be♥ went to sleep about 8 25 EST

Wednesday, August 8, 2012

Lous appointment August 8th 2012

Lous appointment :)
They changed his setting to 200 and it was 190, his shunt is still pumping to fast even with the shunt assistance. His ventricles are really small BUT the neurosurgeon assitance said that shes really surprised because normally every thing gets really sticky but his isnt :) So got some good news and some bad news today but good thing is it isnt severe so go back in a year if everything goes smooth from here to then♥

Wednesday, August 1, 2012

Update time♥

Lou is doing really good, No headaches and no vomiting so that is really good! Yeserday -31st of july- he was EXTREMELY HYPER and didnt want to listen to anybody, hes goin thru another 'testing" stages and this is the worst yet :/  He also ate ALOT yesterday, not to sure why but he did, he wanted to eat every hour, hour and a half, its like he's not gettin the full sensation.
Yesterday he also seen his recent psychiatrist therapist and she said hes doin extremely well♥ and that since he is getting to get to go to the school next to the house and no the one all the way down in downtown that she is no longer going to be able to see him :( A new therapist is going to be seeing him said she's real nice♥ so not looking forward of starting all over again with a new therapist but we got to do what hwe have to do. Maybe Lou will adjust well.
Lou is now on Methephenidate for his Adhd and we love it! He went from Ritalin to Methephenidate to Concerta to back on Methephenidate.
Reasons why he changed :
  • Ritalin- His anxiety was 110 % worst and it was just terriable.
  • Methephenidate- it works wonders but doesn't last long.
  • Concerta- Miracle pill BUT kept him up at night til like midnight, we were not goin to put him on a sleeping pill ! 
The reason we went back to methephenidate is because we can handle him at home after the pill is out of his system, its like some traces is still in him and it holds his hyperness down just where hes not driving his self and myself crazy♥
 So thats the upset On Mr Lou :)

Lou is also 99 lbs and standing at 4 ft 3 inches.