Tuesday, June 24, 2014

Hope this is nothing !

Ok so during the past week Lou has been acting a little strange. Last Sunday he projectiled vomit twice. One at 7 15 and then again at 7 45. Then on Tuesday he slept from 4:30 to 8 and then went back to sleep at 10:30 and slept all the way to 8 o'clock the next morning. And then slept again like that Friday evening but woke up at 4:30 am. 
This Sunday morning he bumped his left side if his head on the church pew. He didn't mean to but it wasn't on the side of the shunt. The shunt is on his right side. And he took a nap yesterday (monday) for about a hour hour and a half. somewhere between there. He went to sleep at about 10:45 last night and woke up at about 6:45 this morning. 
I'm really hoping this is just nothing but I dunno. Keeping my fingers crossed and my hope and faith high as they can possibly go. 

Oh and he made it to 4 years surgery freon the 5th of June :) we are at 4 years and almost 3 weeks post op. So exciting. 



Friday, April 11, 2014

update on Lou and his ADHD.

So lou had his appointment for his adhd last monday [I'm late i know] ---AnYwHo--- He had it last monday and they are wanting to try a fast release on him in the afternoon. he is up 133 lbs at just 8 years old :/ and the time before that he was 115 back in November when they checked him for his reflux. They are wanting to try and calm down his eating and possibility loose some weight. they wouldnt be worried about his weight but his blood pressure was a little high this time around while the last time it was in the normal range. They said that since it is a fast relief that it shouldnt keep him up at night time. Momma asked that because me and her both don't want to put him on a sleeping pill. we won't him to be able to go to sleep on his own and they said since it is a fast relief it shouldnt keep him up:) it will rare off so he can be a normal child and run off his energy ! but thats his update for April 11th 2014 :)

Special Olympics 2014 Rock Hill area 11

Today Was Special Olympics and Lou did an AMAZING JOB at all of it :) They signed him up for Softball throw and 50 meter dash/run. He tied in FIRST PLACE for the softball throw and did 5th place for the 50 meter run. and then after all that they had lunch and then played around some and then went on home. They really truly had a blast and heres some pictures to go along with it ! 
 Lou And his Class <3










Sunday, January 19, 2014

Lou noticed his scar !!

So tonight while I was laying the boys down  Lou noticed his shunt scar from the tubing. He has a tendency to rub his stomach while he goes to sleep. Well here's the conversations :) 


It was hilarious !!




Lou: Amy what is this ?!

Me: what is what??

Lou: this on my stomach WHAT IS THIS?

Me: (with my flashlight on my phone on and laughing) that's your scar from your shunt surgery.


This kid just now noticed his scar from his surgery. And it's goin on 4 years old come June !

Tuesday, September 24, 2013

acid reflux :/


So 2 weeks ago Lou starts having gagging sensations and even clear vomiting and sometimes a headache. We took him to the doctor a day after it started due to neurosurgeons orders and the pediatrictian passed it on as a virus and said if he isnt better with in 2 days then call them back. well we waited for 5 days instead (waited til monday morning) and they made him an appointment that evening and they wanted him to see Dr Goodbar (his main pediatrictian that sees him) and he said he still doesnt think the gagging and vomiting isnt coming from the shunt and that it sounds like a gastroligist thing. And he wanted to treat him for Acid Reflux [GERD] Well with in two days of the medicine he quit the gagging and the vomiting and then the gagging started back and then stopped again. He has another appointment tomorrow morning to see Dr Goodbar again for a checkup and see what we have to do now :) He is currently not vomiting and only gagging some mornings and seems to do pretty good. He takes his Zantac [the medicine they prescribed for the reflux] right after he gets up and then eats and then again  at about 6ish -6 30ish right before his last meal for the day:) 

Friday, August 23, 2013

2nd grade here we come !

Guess who got got bragged on today by his teachers  Thats right! Lou did  So so so proud of him! His teachers told momma yesterday that he is the most well mannered 7 year old they have ever seen! Said he is way beyond their expectations. His main teacher said even in the halls and the cafeteria he always says "yes maam' no maam" thankyou" "your welcome" Yes i am a VERY PROUD Sister !

AND
Lou had a wonderful day today at home AND at school today. SO proud of him! 
Lous teacher did say that she is not pleased with his IEP Goals and outcome so she is going to watch him for another week and then do some changes to his iep chart. I see this kid gettin good reports and outstanding results this school year ! really looking forward to see where this school year takes Lou !


Thursday, August 1, 2013

August 16th

So August 16th can not come fast enough! What is so important about the 16th?! Well it's Lou's neurosurgeon appointment:) get to find out if he is still over draining and to make sure everything is still alrite with him :) a little exciting if you ask me :). The picture was just taken while he is asleep at 10 05 pm August 1st :) and the other one was taking on July 26th on vacation this year :)