Today lou got his stitches out today and he was a champ the whole time :) heres some pictures that we took today while waitimg on the doctor to come in :)
Monday, April 15, 2013
Sunday, April 14, 2013
Headache tantrum oh my !
Lou started having a tanturm/ headache at about 7:30 tonight. it started as a tantrum and then ended up as a headache. he is coned headed where his skull does not come together he complain about his head hurtin there. but I felt the spot and there's no buldge of fluid. so definitely going to tell mom about it and see what she has to say. it kinda freaked me out because this is the first time it has happened. but no vomit so this is not a worry attack or nothing. just one weird headache. but since it is where his skull is not coming together it kinda has me worried
Monday, March 25, 2013
march 25th, 2013
so today i would have to say was wonderful for Lou ♥ He started a new medication. Metadate CD 20 mg and it was like he was a total different child. I know this is the first day but i think we have a winner :)
They changed it from methaphenidate because it wasnt lasting long enough, he was being extremely loud, hittin walls, bitting his clothes, and really hyper. and today the therpaist and his teacher said that today was wonderful for him AND he said "I LOVE MY NEW PILL"
but on saturday we will see how his anxiety does with it. SO THAT will be the real tester <3
Thursday, September 20, 2012
2 posts from facebook♥
September 18th, 2012
Everyone please keep Lou in your prayers♥
He complained this morning that his shunt was burning and the shunt area is very sensitive :/ ( i couldnt even wash his hair normal this morning) . Momma called the neurosurgeons nurse and she said she has not heard anyone with a shunt saying it has ever burned, And to keep an eye on him and call them back if it happens again. She said we dont want to just assume its something but to look out for other signs like fever, vomiting, and headaches. Thanks so much♥♥
September 19th 2012
just about 36 hours since momma has called Lous neurosurgeon and He hasnt had NO more burning♥ YAY :) shunt is still sensitive thou BUT i was able to wash his hair like i normally would. Maybe me and momma does have to worry about something other then a Stomach virus or a simple little cold but worrying over something that could cause him to have to have immediately surgery 36 hours prior to Not have a worry in the world is simply AMAZING♥ And Sam had a WONDERFUL day today knowing that His big brother is ok :)
Everyone please keep Lou in your prayers♥
He complained this morning that his shunt was burning and the shunt area is very sensitive :/ ( i couldnt even wash his hair normal this morning) . Momma called the neurosurgeons nurse and she said she has not heard anyone with a shunt saying it has ever burned, And to keep an eye on him and call them back if it happens again. She said we dont want to just assume its something but to look out for other signs like fever, vomiting, and headaches. Thanks so much♥♥
September 19th 2012
just about 36 hours since momma has called Lous neurosurgeon and He hasnt had NO more burning♥ YAY :) shunt is still sensitive thou BUT i was able to wash his hair like i normally would. Maybe me and momma does have to worry about something other then a Stomach virus or a simple little cold but worrying over something that could cause him to have to have immediately surgery 36 hours prior to Not have a worry in the world is simply AMAZING♥ And Sam had a WONDERFUL day today knowing that His big brother is ok :)
Monday, September 3, 2012
one weird Bad Headache.
Well Lou had a bad headache today but it was weird how it happened.
We went to the store momma got out of the store *it was raining and with mine and lous bad balance didnt wont to risk it* And about 2 mins after momma went into the store Lou starts screaming and it gently went down to a little whining. We live about 9 and a half minutes away from the store and he whined about his head hurting the whole 15 minutes. The weird part is that he was fine and dandy when he got out of the car. It was strange to me. He has NEVER done that before. He was acting like he does when his shunt malfunctions but he never once got sick.
But right now he is asleep, and comfortable as can be♥ went to sleep about 8 25 EST
Saturday, September 1, 2012
Wednesday, August 8, 2012
Lous appointment August 8th 2012
Lous appointment :)
They changed his setting to 200 and it was 190, his shunt is still pumping to fast even with the shunt assistance. His ventricles are really small BUT the neurosurgeon assitance said that shes really surprised because normally every thing gets really sticky but his isnt :) So got some good news and some bad news today but good thing is it isnt severe so go back in a year if everything goes smooth from here to then♥
They changed his setting to 200 and it was 190, his shunt is still pumping to fast even with the shunt assistance. His ventricles are really small BUT the neurosurgeon assitance said that shes really surprised because normally every thing gets really sticky but his isnt :) So got some good news and some bad news today but good thing is it isnt severe so go back in a year if everything goes smooth from here to then♥
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